Fontan time

Sorry I have not written in so long, but life has been moving so fast. Aharon you have grown so much and you are so smart. You can add things together, you can read letters and numbers. You know the entire alphabet and can count to 30 in english and 10 in Spanish and we don't even speak Spanish. You are a little chatterbox with big ideas and even bigger opinions. You are kinda a big deal. The time has come for your Fontan procedure to help your funky little heart. You had your surgery on Monday and you are doing great. All of the chest tubes have been removed and most of the lines. They are talking about discharging you to the step down unit today. Your kinda a celebrity and nurses from all over come to see the cute little boy with the long hair. Everyone has fallen in love with you from the housekeepers to central supply to nurses and doctors. You have touched so many hearts with your warrior spirit. You barely even need pain meds anymore except when we take you for your walking parade down the unit. I am so proud of you Tinki Boi and I love you so much. God is so good to us and he has been so good to you. I am really grateful for the love that God has shown our family. I love you so much Aharon and I am so priveledged to be your mommie. I see nothing, but greatness in your future. God bless you Aharon and God Bless our family. Always

Wow what an amazing boy

Happy 2nd birthday

Aha, Chachi, Tinki boi, lil Buddy, Chacharon. There are so many little names for you. What a blessing, 2 years together. It seems like just yesterday I was holding you in my arms and you were so tiny. Now you are a little guy with a big personality. I have been so amazed by your courage and strength. You are the strongest human being I know. We have been so blessed. God has kept you healthy and strong. Your life has been pretty normal. 2-open heart surgeries and you are no different than the other kids on the outside, but on the inside you have a special heart. Your heart may be different, but it is a source of strength for all of us. When I lay with you, I feel your thumping on my chest and I am so amazed. I don't know how or why it works, but by God's will it does. I am so lucky to haves you and we are lucky to be surrounded in good thoughts and prayers. Words cannot capture the gratitude in my heart. I love you so much it hurts. Aharon May God continue to be gracious to you and keep and safeguard you always. I look forward to every moment we will haves together and to watching you grow. I love you more than my own life. Always.

happy 23 months

OMG you are almost 2. I can't believe the time is going so fast. It has definately been a joyous ride. I never would haves imagined how much you could touch my heart. I always tell you that you are the love of my life and I love Ella Mae the most, and Nayla the hardest. The truth is its so amazing how big our hearts really are. I haves so much for you 3 that sometimes I can barely breathe. You are so much to so many people, truly an inspiration. Despite the struggles we have had early on you haves done so well. You weigh about 26 lbs. You are talking so much and you are so smart. You can work a smartphone better than I can. I can't wait till you are able to go to school so we can share your experiences and watch you grow. I love you so much ny little Chachi and I Hope and pray each and every day in my heart and soul that you love your life and that God will make it a long healthy and happy one. I can't wait til next month when we get to share another birthday together. God bless you little man. God bless us all.