Showing posts with label Chd. Show all posts
Showing posts with label Chd. Show all posts
Thursday, November 29, 2012
Fontan time
Sorry I have not written in so long, but life has been moving so fast. Aharon you have grown so much and you are so smart. You can add things together, you can read letters and numbers. You know the entire alphabet and can count to 30 in english and 10 in Spanish and we don't even speak Spanish. You are a little chatterbox with big ideas and even bigger opinions. You are kinda a big deal.
The time has come for your Fontan procedure to help your funky little heart. You had your surgery on Monday and you are doing great. All of the chest tubes have been removed and most of the lines. They are talking about discharging you to the step down unit today. Your kinda a celebrity and nurses from all over come to see the cute little boy with the long hair. Everyone has fallen in love with you from the housekeepers to central supply to nurses and doctors. You have touched so many hearts with your warrior spirit. You barely even need pain meds anymore except when we take you for your walking parade down the unit. I am so proud of you Tinki Boi and I love you so much. God is so good to us and he has been so good to you. I am really grateful for the love that God has shown our family.
I love you so much Aharon and I am so priveledged to be your mommie. I see nothing, but greatness in your future. God bless you Aharon and God Bless our family. Always
Labels:
Chd,
congenital heart disease,
Every heart has a story,
fontan
Tuesday, November 22, 2011
Happy Belated 21 Months
Wow can you say Mommy is a slacker. Hahaha. We've been super busy. You've had a little cold off and on. Were getting ready for Thanksgiving. I'm super excited because you are becoming so much more aware. You are so funny. You have quite a few words, but you will be getting Speech therapy to help you get more talkative. You are 81 cm and 24.31 lbs. You are growing nicely. A little peanut, but a hearty little nut. For the most part your heart stuff is doing good. You continue to be strong and healthy. You are so in love with your big sisters. It's adorable how you hug and love them. I love watching your Mr Busy Body moves. You follow MaeMae around trying to be in the mix. You have mastered the puppet master dance from Yo Gabba Gabba, and you love the Fresh Beat Band. You just tickle me with all that you do, except for those super Bratty Moments when you try to push me over the edge. I love you so much. You are my little partner in crime, my Love, my Hope, my Miracle, my Buddy.
Tuesday, October 18, 2011
Happy 20 months
Wow Aha this is a late post, but so much has been going on. Last week we went to CA Adventure and had a blast. You loved the rides. You are just so adorable, but you are definitely a handful. It's amazing how active you are. You have a few new words, but at the top of the list is baby and hot. You love to say hot when you have food. It's cute. You say hot and then blow. On a different not so cute note you had quite the accident last night. You decided to take one of the glass cups off of the table (Mommy and Daddy should've known better) but you dropped it and it broke on the floor and you cut your foot. Needless to say you needed 4 stitches. It's amazing that since you were born and considering your heart defect we have never had an emergency situation. With God's Blessing you truly are a regular little boy. It brings so much joy to my heart how normal your life really has been. The doctors could not believe how good you look considering your sats are in the 80s with a cold. I thank God everyday for you Aharon you are my soul mate my little booger. I know that each time I look at you that you truly are amazing. God Bless you and Strenthen you always.
Wednesday, April 13, 2011
Happy 14 months
Well what can I say. You are amazing. You are now getting your top left tooth. The bottom two have been kinda lonely for some time. You say Mama, pa, buh, (book) muh,(mine) and some other words that I have not figured out yet. You love to play. We have been waiting for you to walk and sure enough you took 5 steps tonight on 2 different occasions. Yay. You are just too cute, we love you so very much. You have been healthy and strong. Oh yeah and the other big news is that you are officially weaned today. No more breast milk. You can feed yourself some and you're drinking from your sippy cup. It' s so much fun having you around. We love you so much Cha chi.
Subscribe to:
Posts (Atom)