Fontan time

Sorry I have not written in so long, but life has been moving so fast. Aharon you have grown so much and you are so smart. You can add things together, you can read letters and numbers. You know the entire alphabet and can count to 30 in english and 10 in Spanish and we don't even speak Spanish. You are a little chatterbox with big ideas and even bigger opinions. You are kinda a big deal. The time has come for your Fontan procedure to help your funky little heart. You had your surgery on Monday and you are doing great. All of the chest tubes have been removed and most of the lines. They are talking about discharging you to the step down unit today. Your kinda a celebrity and nurses from all over come to see the cute little boy with the long hair. Everyone has fallen in love with you from the housekeepers to central supply to nurses and doctors. You have touched so many hearts with your warrior spirit. You barely even need pain meds anymore except when we take you for your walking parade down the unit. I am so proud of you Tinki Boi and I love you so much. God is so good to us and he has been so good to you. I am really grateful for the love that God has shown our family. I love you so much Aharon and I am so priveledged to be your mommie. I see nothing, but greatness in your future. God bless you Aharon and God Bless our family. Always

Wow what an amazing boy

Happy 2nd birthday

Aha, Chachi, Tinki boi, lil Buddy, Chacharon. There are so many little names for you. What a blessing, 2 years together. It seems like just yesterday I was holding you in my arms and you were so tiny. Now you are a little guy with a big personality. I have been so amazed by your courage and strength. You are the strongest human being I know. We have been so blessed. God has kept you healthy and strong. Your life has been pretty normal. 2-open heart surgeries and you are no different than the other kids on the outside, but on the inside you have a special heart. Your heart may be different, but it is a source of strength for all of us. When I lay with you, I feel your thumping on my chest and I am so amazed. I don't know how or why it works, but by God's will it does. I am so lucky to haves you and we are lucky to be surrounded in good thoughts and prayers. Words cannot capture the gratitude in my heart. I love you so much it hurts. Aharon May God continue to be gracious to you and keep and safeguard you always. I look forward to every moment we will haves together and to watching you grow. I love you more than my own life. Always.

happy 23 months

OMG you are almost 2. I can't believe the time is going so fast. It has definately been a joyous ride. I never would haves imagined how much you could touch my heart. I always tell you that you are the love of my life and I love Ella Mae the most, and Nayla the hardest. The truth is its so amazing how big our hearts really are. I haves so much for you 3 that sometimes I can barely breathe. You are so much to so many people, truly an inspiration. Despite the struggles we have had early on you haves done so well. You weigh about 26 lbs. You are talking so much and you are so smart. You can work a smartphone better than I can. I can't wait till you are able to go to school so we can share your experiences and watch you grow. I love you so much ny little Chachi and I Hope and pray each and every day in my heart and soul that you love your life and that God will make it a long healthy and happy one. I can't wait til next month when we get to share another birthday together. God bless you little man. God bless us all.

happy 22 months

Better late than never. So much has been happening. You are getting so big. 25 lbs 6oz. You have a.lot of words and you parrot everyone. The holiday just passed. It was so amazing to see how much you have grown and how aware you are. You have been very healthy for the most part, however your battling a mild case of the croup. Even then you still run the show. You are quite the little dancer. You love to dress up (mainly in Ella's clothes) Your cardiac stuff has been good so far. Most times we don't even feel like you have a funky little heart. It is as though God is healing you and making your heart work for you. We are so blessed. We love you Chachi..You are such an amazing little blessing

Happy Belated 21 Months

Wow can you say Mommy is a slacker. Hahaha. We've been super busy. You've had a little cold off and on. Were getting ready for Thanksgiving. I'm super excited because you are becoming so much more aware. You are so funny. You have quite a few words, but you will be getting Speech therapy to help you get more talkative. You are 81 cm and 24.31 lbs. You are growing nicely. A little peanut, but a hearty little nut. For the most part your heart stuff is doing good. You continue to be strong and healthy. You are so in love with your big sisters. It's adorable how you hug and love them. I love watching your Mr Busy Body moves. You follow MaeMae around trying to be in the mix. You have mastered the puppet master dance from Yo Gabba Gabba, and you love the Fresh Beat Band. You just tickle me with all that you do, except for those super Bratty Moments when you try to push me over the edge. I love you so much. You are my little partner in crime, my Love, my Hope, my Miracle, my Buddy.

Happy 20 months

Wow Aha this is a late post, but so much has been going on. Last week we went to CA Adventure and had a blast. You loved the rides. You are just so adorable, but you are definitely a handful. It's amazing how active you are. You have a few new words, but at the top of the list is baby and hot. You love to say hot when you have food. It's cute. You say hot and then blow. On a different not so cute note you had quite the accident last night. You decided to take one of the glass cups off of the table (Mommy and Daddy should've known better) but you dropped it and it broke on the floor and you cut your foot. Needless to say you needed 4 stitches. It's amazing that since you were born and considering your heart defect we have never had an emergency situation. With God's Blessing you truly are a regular little boy. It brings so much joy to my heart how normal your life really has been. The doctors could not believe how good you look considering your sats are in the 80s with a cold. I thank God everyday for you Aharon you are my soul mate my little booger. I know that each time I look at you that you truly are amazing. God Bless you and Strenthen you always.